New Alliance Improves Support for Canadians Living with Lipedema and Lymphedema

Lipedema Canada and the Lymphedema Association of Ontario have affiliated to better support Canadians living with lipedema, lymphedema, or both. The two organizations are connecting their communities to a broader network of care, making it easier to find reliable information and resources for two closely linked conditions that are too often confused, underdiagnosed, and under-supported.

Lipedema Canada and Lymphedema Ontario join forces.

Lipedema and lymphedema are separate health conditions, but for many Canadians, they can be overlapping realities. Both affect the lymphatic system, are frequently confused with one another, and may co-exist. And notably, both are underdiagnosed and under-supported by Canadian health care.

Lipedema Canada and the Lymphedema Association of Ontario (LAO) are working together to change that. The two organizations have affiliated to connect their communities to a broader network of support. For people living with one or both conditions, it means better access to the information and resources they need, regardless of where they first found help.

“We hear from people all the time who are managing both conditions, and we want to provide them with the best information we can. Aligning with the LAO means our community has a clearer path to the right support, and it means we can do more together than either of us can do alone.”

Emma Cloney RNBN, President, Lipedema Canada

 

“Lipedema comes up in our work, because the conditions are closely linked and so often misunderstood. Our members deserve access to good information about both. Lipedema Canada is doing important work on behalf of a community that has been underserved for far too long, and we are proud to stand alongside them.”

Dolores Steinwall, President, Lymphedema Association of Ontario

Both organizations remain independent, each continuing to serve their own communities. This affiliation is about extending reach and removing barriers, so that no one falls through the gap between two conditions that have always been more connected than the healthcare system has recognized.

To learn more about Lipedema Canada, visit lipedemacanada.org. To learn more about the Lymphedema Association of Ontario, visit lymphontario.ca.

 

About Lipedema Canada

Founded in 2023, Lipedema Canada is Canada’s national charitable organization dedicated to supporting those living with lipedema, their families, and the healthcare professionals who care for them. Lipedema Canada fosters community, advances awareness among medical professionals, and advocates for government recognition and support. For more information, visit lipedemacanada.org.

About the Lymphedema Association of Ontario

Founded in 1996, the Lymphedema Association of Ontario is Ontario’s trusted resource for lymphedema support, education, and advocacy, helping people access reliable information, community support, and pathways to care. LAO serves individuals, caregivers, and healthcare professionals across Ontario. For more information, visit lymphontario.ca.