"I thought my legs were a result of being fat and not exercising enough! I discovered that lipedema is in fact real and not rare. But wait—no Canadian diagnostic code, no Canadian standards of care, not taught in Canadian medical schools. Now what?"
From diagnosis to dancing: the road I’ve travelled
Angel's triumphant and heartfelt account of navigating lipedema surgery abroad. "Once I learned about the condition and realized it was so obvious I had it, I was frustrated that no medical professional had mentioned it to me before."
Love letters to my lipedemic self
Jerusha shares heartfelt letters to her younger self as she journeys through life with end stage lipedema. You’ve been told your chronic illness is killing you and you have mere months to live. One day, completely out of the blue, your oldest son says, “Mom, why don’t you find a doctor who can fix your legs? That is what doctors are supposed to do!”