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DTSTART;TZID=America/Winnipeg:20250603T183000
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UID:10000096-1748975400-1748979000@www.lipedemacanada.org
SUMMARY:Fireside Chat – with the Board: Kick Off Lipedema Awareness Month
DESCRIPTION:Join us for a special evening with the Board of Lipedema Canada as we officially launch Lipedema Awareness Month. This intimate Fireside Chat is your opportunity to hear directly from our leadership\, get a first look at what’s planned for June\, and be part of a growing national movement of advocacy\, education\, and support. \n\n\n\nWhat to Expect: \n\n\n\n• Unveiling of Lipedema Awareness Month activities\, including: \n\n\n\n• Live and on-demand webinars \n\n\n\n• Community special events \n\n\n\n• In-person gatherings across Canada \n\n\n\n• Celebrating our first year milestones and mapping our future \n\n\n\nInteractive conversation with board members about our mission\, progress\, and how you can get involved \n\n\n\nThis event is free and open to the public—whether you are newly diagnosed\, a caregiver\, health professional\, or advocate\, we welcome you to come connect\, learn\, and share. \n\n\n\nHow to Watch and Participate: • Tune in directly via our YouTube and your comments and questions can be added to our broadcast live. Link HERE \n\n\n\n• Watch and comment from our Facebook Live – Link HERE
URL:https://www.lipedemacanada.org/event/fireside-chat-with-the-board-kick-off-lipedema-awareness-month/
CATEGORIES:Webinars
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LOCATION:https://www.youtube.com/live/WWPOxaeBNXQ?si=v2P2FCnE3N8_9HQv
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UID:10000101-1749128400-1749157200@www.lipedemacanada.org
SUMMARY:Podcast - Thrive Beyond Size
DESCRIPTION:The Disease That Affects Millions—and Still Doesn’t “Exist” \n\n\n\nLipedema is painful\, progressive\, and deeply underdiagnosed. And it’s time we talked about it. \n\n\n\nLipedema Canada volunteers Diana Dimmock and Emma Cloney sat down with Dr. Michelle Tubman of the Thrive Beyond Size podcast to talk about the reality of living with lipedema in Canada. \n\n\n\nHere is what Michelle had to say about the experience: \n\n\n\nI had a podcast interview this morning that profoundly affected me.I’ve struggled with many things about medicine for a while – I’m proud to be a physician and love my job\, but I’m also deeply aware of the harm we often cause patients\, and the medical trauma that results.Somewhere along the way I lost blind faith in medicine\, and I think that’s a good thing. We often do things in medicine because a guideline says so\, but we don’t question the evidence (or financial motivations) behind them. Or worse\, we do things because “that’s just the way it’s done” when the evidence clearly tells us something different.But I often feel judged when I question things\, and sometimes I doubt myself because of that.And then I have an interview like this\, and I realize more than ever how important it is to question medicine.I interviewed Diana and Emma from Lipedema Canada.You may have never heard of lipedema. Here’s why:  – it’s a condition affecting primarily women  – it’s not taught in Canadian medical schools  – very few Canadian doctors have even heard of it  – there’s no diagnostic codes available for it in Canada  – there’s no research done about it in Canada  – there are zero surgeons in this country with the skills to treat it  – it’s mistaken for being fat\, and we all know the bias associated with thatWhy does this matter?  – 1 in 9 women are affected by this – that means over 2 million Canadians!  – it is a painful and debilitating condition  – and treatment is availableWhat makes this all so shocking is that this isn’t some rare\, unknown thing. There is a massive body of high quality literature about lipedema. Canada is literally 80 years behind the rest of the world.Women affected often need to travel to the US or to Europe to get the treatment they need\, if they’re even able to get diagnosed.Can you imagine knowing something is wrong with your body\, seeing doctor after doctor\, and never getting an answer because your doctor doesn’t know (through no fault of their own)?Or being told to just eat less and move more and then being shamed when it doesn’t work?Or worse\, doing research\, and having questions about lipedema\, and your doctor labeling you as “crazy” or a “problem patient” when you try to bring it up because they’ve never heard of it?It’s one thing if it’s a truly rare thing that the medical community is still learning about. But that’s not the case with lipedema. It’s well known and a common diagnosis – just not in Canada.This interview was meant to provide education on lipedema\, and it ended up being so much more.It will be released on my podcast on June 5th. I recommend listening to it to learn more about lipedema\, and also how Canadian healthcare is failing women.  – Michelle\n\n\n\nListen to the Podcast\n\n\n\nYou can also find it at thrivebeyondsize.com/206. \n\n\n\nYouTube https://youtu.be/SYa1EcJBqJQ \n\n\n\nSubstack\, and a post to go along with our interview will be here: https://open.substack.com/pub/wayzahealth/p/the-disease-that-affects-millionsand?r=1uu96f&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true
URL:https://www.lipedemacanada.org/event/podcast-thrive-beyond-size/
CATEGORIES:Podcasts
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LOCATION:https://www.youtube.com/watch?v=SYa1EcJBqJQ
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